| Term 
 
        | Consequences/Importance of ID Definition |  | Definition 
 
        | Eligibility Subjected to
 Exempt from
 Included in
 Entitled to
 |  | 
        |  | 
        
        | Term 
 
        | How many people in the US have an ID? |  | Definition 
 | 
        |  | 
        
        | Term 
 
        | How many families in the US are affected by ID? |  | Definition 
 | 
        |  | 
        
        | Term 
 
        | What percentage of the population has ID? (APA) |  | Definition 
 | 
        |  | 
        
        | Term 
 
        | How does one get classified as ID? |  | Definition 
 
        | 2 standards deviations below the mean |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | characterized by significant limitations in both intellectual functioning and adaptive behavior expressed in conceptual, social, and practical skills; it presents before age 18 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -umbrella term -includes physical and intellectual disablities
 -DEFINITION-severe, chronic physical and/or cognitive disability that manifests before age 18 and is likely to be lifelong
 -tends to be more significant than ID
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -if apparent at birth, it is usually DD -ID individuals can progress out of their classification
 -DD is life long
 |  | 
        |  | 
        
        | Term 
 
        | 3 causes of intellectual disability |  | Definition 
 
        | Infections (TORCH) -Toxoplasmosis
 -Other
 -Rubella
 -Cytomeglovirus
 -Herpes Simplex Virus
 Brain Damage
 Genetics
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | Parisite found everywhere in warm-blooded animals
 frequent in cats in the US
 can be infected by eating undercooked meat, ingesting dirt
 |  | 
        |  | 
        
        | Term 
 | Definition 
 | 
        |  | 
        
        | Term 
 | Definition 
 
        | -measles -contracted during pregnancy
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | mononucleosis contracted during pregnancy
 5% of embryo's develop mono
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | Can remain dormant if there is an outbreak during birth, can result in brain damage or death
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | 1) Traumatic Brain Injury-occurs from exterior physical force (e.g. shaking baby syndrome) 2)Congenitcal Brain Damage-Hereditary or Environmental
 -Fetal Alcohol Syndrome-distinct facial features, poor coordination, heart deficits, anxiety, malformed joints, good days/bad days
 3) Progressive brain damage-manifests after birth-e.g. Battens disease-inherited metabolic disorder
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | down syndrome fragile x
 angelman syndrome
 williams syndrome
 bardet-biedle syndrome
 .....
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -most common genetic ID -not specific to any race/gender
 -1/800 births
 -trisomy 21
 -chances increase with mother's age
 -smaller brain volume, shorter diameter
 -distinct slant from front of head to back
 -slanted eyes
 -flat face
 -profound crease in hand
 -blood test is only way of ID'ing it
 -susceptible to alzheimer's
 -Mosaic Down Syndrome-mutation occured later in gestation, so not every cell has trisomy 21
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -second leading cause of genetic ID -leading cause of genetic ID in males
 -FMR1 mutation-mutation of gene on X chromosome, excessive copy of gene
 -1/4000 males, 1/6000 females
 -recessive
 -one study suggests slightly higher risk in caucasian than black
 -lower ears
 -longer face
 -broad forehead
 -pronounced jaw
 -hyperflexive joints
 -flat-footed
 -enlarged testicles at adolescence
 -poor social development
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -mutation of chromosome 7, portion of chromosome is missing -random, not inherited
 -1/8000
 -equal opportunity
 -sunken nasal bridge, upturned nose, small chine, wide full mouth, puffy skin around eyes, light eyes with starburst design, abnormally long neck, sloping shoulders
 -susceptible to cardiovascular disease and hearing loss
 -varying degrees of cognitive impairment (motor skill deficincies seen first)
 -good expressive skills
 -attention may improve with age
 -concrete thinkers, spatial deficits
 -easily stressed
 -a lot of potential with support
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -absence of certain group of genes that control ubiquitin production -chromosome 15
 -inherited or random
 -1/12-20,000
 -equal opportunity
 -1,000-5,000 cases in N.A.
 -protruding toungue, smaller head
 -feeding issues
 -developmental delays apparent at 2-12 months
 -may experience seizures by age 3
 -100% have developmental delay, speech problems, movement and balance problems, frequent laughter, short attention span
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -Mutation on chromosome 3 -polydactyl limbs
 -Intellectual Disability
 -development of reproduction system affected
 -renal failure--> death
 -obesity common (do not register fullness)
 -impaired speech
 -poor coordination
 -1/140,000 (1/13,500 in Kuwait and 1/17,000 in newfoundland)
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -rare autosomal recessive gene disorder -mutation on chromosome 2
 -ID
 -deformation of reproductive organs
 -maturity, behavior, coordination problems
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -Mutation in cell repair genes on chromosome 5 -1/100,000
 -Fast aging process
 -exposure to light increases aging
 -not related to cancer
 -eyes sunken, ears deformed, disproportionate
 -cannot completely close eyelids
 -progressive in nature
 -Type I-not seen at birth, may live through adolescence
 -Type II-seen at birth, short lifespan
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -Chromosome 5-missing piece of short arm -1/20-50,000
 -More common in females
 -random mutation, not inherited
 -feeding problems, poor growth, severe ID, agression
 small head/jaw, eyes spread apart and have downward slant, webbing between fingers and toes, flat nasal bridge
 -apparent at birth
 -ID becomes more severe with age
 |  | 
        |  | 
        
        | Term 
 
        | Cornelia du Lang Syndrome |  | Definition 
 
        | -Nipped gene on chromosome 5 -1/10-30,000 births
 -excessive body hair
 -long eye lashes
 -tip of nose pointed
 -significant developmental delays
 -cup-shaped mouth
 -hearing/vision loss
 |  | 
        |  | 
        
        | Term 
 
        | Rubinstein-Taybi Syndrome |  | Definition 
 
        | -1/300,000 -No known cause
 -thick and low-lying hair
 -thick thumbs and first toes
 -ADD
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -Absence in Hex-A-responsible for metabolizing fatty acids in cells -not apparent at birth
 -loss of peripheral vision
 -innappropriate response to stimuli
 -lose skills they have learned
 -seizures common
 -1/27 Ashkenzi Jews are carriers
 -1/250 general population
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -deletion of chromosome 15 -1/12-15,000
 -decreased muscle tone
 -hypergonadism
 -if inherited by father, 70% will get prader willi
 -same deltion inherited by mother, angelman's syndrome
 -inherited/mutational
 -capacity to learn
 -obsessive compulsive behavior
 |  | 
        |  | 
        
        | Term 
 
        | Mild Intellectual Disability |  | Definition 
 
        | -Pervasive learning problems -lack of social adjustment, motivation, and or self management skills
 -discrepancy between their actual intellectual ability and their actual achievement
 -come with a variety of labels
 -not visibly apparent
 -cognitive, academic, and social characteristics
 -2-4 years behind peers
 -2-3 standard deviations below norm
 |  | 
        |  | 
        
        | Term 
 
        | Three groups of Mild Intellectual Disability |  | Definition 
 
        | 1) Specific Learning Disabilities-does not fall under regular ID-can occur in specific curricular areas, may be pervasive, does not cover sensory impairments, does not cover ID 2)Emotional/behavioral disturbance-functioning as ID even though they are intellectually capable-intelligence tests not showing/explaining deficits-innappropriate, dangerous behaviors-paranoia, obsessiveness, rigitity, schizophrenia
 3) Mild MR
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | specific learning disabilities-50% mental retardation-10.6%
 emotional disturbance-8.2%
 |  | 
        |  | 
        
        | Term 
 
        | Remediation vs. Compensation |  | Definition 
 
        | remediation-modifying instruction compensation-using assitive technology to support student growth
 
 -30% remediation, 70% compensation and adjust according to growth and IEP (Edyburn, 2002)
 -want to build a good foundation without affecting quality of life
 -fair is not equal
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -chances increase with mother's age -25 years- 1/1,250
 -45 years- 1/30
 -diagnostic tests-length of long arm or leg bone, length of nasal bridge, size of renal pelvis, small bright spots in heart, etc.
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -brain disorder -normal pattern of neuronal activity is disrupted
 -must have 2 or more seizures to have epilepsy
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -3 million americans -315,000 students in US
 -1/100 people develop epilepsy
 -1 in 10 people will have a seizure in their lifetime
 -more common than cerebral palsy, parkinson's disease, and multiple sclerosis combined
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | 70% of seizures are unknown causes 30%:
 -brain trauma
 -brain tumors
 -poisoning (lead)
 -infections of brain
 -brain injury at birth
 -abnormal brain development
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | Generalized-involve the whole brain-absence and tonic-clonic symptoms-convulsions, staring, muscle spasms, and falls
 
 Partial Seizures-involve only a part of the brain-common types include simple partial and complex partial-syptoms relate to the part of the brain affected
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -Gneralized seizure -pause in activity with blank stare
 -brief lapse of awareness
 -possible chewing or blinking motion
 -usually lasts 1-10 seconds
 -may occur many times/day
 -May be confused with daydreaming, lack of attention, ADD
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -Generalized seizure -sudden, hoarse cry
 -fall
 -convulsions
 -shallow breathing and drooling
 -loss of bowel control
 -skin, nails, lips may turn blue
 -generally lasts 1-3 minutes
 -followed by confusion, headache, tiredness, soreness, and speech dificulty
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -Stay calm and track time -check for epilepsy seizure disorder I.D. (bracelet, necklace)
 -protect student from possible hazards (tables, chairs)
 -turn student on side
 -cushion head
 -after seizure, remain with student until awareness of surroundings is fully gained
 -provide emotional support
 -document seizure activity
 |  | 
        |  | 
        
        | Term 
 
        | When is a seizure an emergency |  | Definition 
 
        | -First time seizure -convulsive seizure lasting more than 5 minutes
 -repeated seizures without regaining consciousness
 -more seizures than usual or change in type
 -student who is injured, has diabetes, or is pregnant
 -seizure occurs in water
 -normal breathing does not resume
 -parents request emergency evaluation
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | Full awareness maintained -rhythmic movements
 -sensory symptoms (tingling, weakness, sounds, tastes, smells)
 -Psychic symptoms-deja vu, hallucinations
 -usually lasts less than 1 minutes
 -may be confused with acting out, mysical experience, or psychosomatic illness
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -Awareness impaired/inability to respond -often begins with blank dazed stare
 -clumsy or disoriented movements
 -often lasts 1-3 minutes
 -often followed by tiredness, headache, or nausea
 -may become combatative if restrained
 -may be confused with drunkenness or drug abuse and agressive behavior
 |  | 
        |  | 
        
        | Term 
 
        | Complex Partial Seizure First Aid |  | Definition 
 
        | -Stay calm, track time -Check for medical ID
 -Gently direct away from hazards
 -don't expect student to abey verbal commands
 -stay with student until fully aware
 -if seizure lasts 5 minutes beyond what is routine for that student or if another seizure begins before full consciousness is acheived, follow emergency protocol
 |  | 
        |  | 
        
        | Term 
 
        | Convulsive Seizure in a wheel chair |  | Definition 
 
        | -do not remove from wheelchair unless absolutely necessary -secure wheelchair to prevent movement
 -fasten seatbelt loosely to prevent student from falling
 -protect and support head
 -ensure breathing is unobstructed and allow secretions to flow from mouth
 -pad wheelchair to prevent injuries to limbs
 -follow relevant seizure first aid protocol
 |  | 
        |  | 
        
        | Term 
 
        | convulsive seizure on a school bus |  | Definition 
 
        | -safely pull over and stop bus -palce student on his/her side across the seat facing way from the seat back (or in aisle if necssary)
 -follow standard seizure first aid
 -continute to destination once full consciousness and awareness is regained
 |  | 
        |  | 
        
        | Term 
 
        | convulsive seizure in water |  | Definition 
 
        | -support head so that both the mouth and nose are above water -remove student from the water as soon as it can be done safely
 -if the student is not breathing, begin rescue breathing
 -always transport student to the emergency room even if they appear fully recovered
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -based on a study that burning fat for energy has an antiseizure effect -high fat content, no sugar and low carb and protein intake
 -requires strong family, school, and caregiver committment (no cheating allowed)
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -implanted just under skin in the chest with wires that attach to vagus nerve in neck -delivers electrical stimulation to the vagus nerve in the neck that relays impulses to widespread areas of the brain
 -primarly used to treat partial seizures when medication is not working
 -use of special magnet to active the device
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -used in acute or emergency situations to stop a siezure that wont stop on its own -approved by FDA for use by parents and non-medical caregivers
 -state/school district regulations often govern use in schools
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -3-7% school aged children have it -2X more common in boys
 -22% increase from 2003-2007
 -Diagnosed based off of behavioral symptoms
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | Type I-inattentive-hard to follow instructions, easily distracted, difficulty remembering daily routines 
 Type II-hyperactive-talks, fidgets, restless, impulsivity control, hard to wait their turn
 
 Type III-Combined Type-mix of both
 
 *has to be present by age 7 for combined type
 |  | 
        |  | 
        
        | Term 
 
        | ADHD Treatments and side effects 
 American Academy of Pediatrics Guideline for ADHD Medication
 |  | Definition 
 
        | -Stimulants-best known, most widely used-70% respond positively-ritalin, dexadrine, adderall 
 -Non-stimulants-short acting (24 hours)-trial and error, not approved by FDA, not 1st line of defense
 
 Side effects-sleeplessness, lack of eating, irritability, increase in HR
 
 AAP-Pre-K-should be behavioral therapy only (severity may determine use of stimulants)-elementary school-behavioral therapy and/or FDA approved stimulants-adolescents-FDA medications AND behavioral therapy
 |  | 
        |  | 
        
        | Term 
 
        | Methods for Parents and Teachers to use with ADHD |  | Definition 
 
        | -expectations at home should be expectations everywhere -create structure
 -help organize
 -clarify everything
 -frequent praise
 -limit choices
 -social-skills training
 -follow through with everything, do not cop-out or make excuses for child
 |  | 
        |  | 
        
        | Term 
 
        | Adapting the classroom environment for included learners |  | Definition 
 
        | 1) Create a structure optimal for learning-Robinson (1990) found that class size is most importatn for K-3, but decrease every year, same strategies in small groups can also be applied to large classrooms 2)inventory and evaluate all available teaching materials
 3) develop a classroom routine-scedules plan
 4) prioritize goals, assess-know the curriculum/standards, do diagnostic tests
 5) create a system of documentation-accountability
 6) appreciate small successes-you dictate attitude in the classroom
 7) stay curent on best practice-ever-changing field
 8) establish positive working conditions-build mutual respect
 9) clearly mark work areas-avoid distractions, provide diagrams, etc.
 10) reduce audtory/visual distractions-keep it simple, less is more
 11) use strategic seating-rows, groups, can you see every child? can every child see you? for mild ID-closer to front, middle is preferred
 12) use visual cues/schedules
 13) specify classroom rules-psoitively frame guidelines
 14) organize staff scheduling-gernal and invididual classroom schedules
 15) organize materials
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | -assess pre-requisite/foundational skills modify activities as necessary to allow learner to respond in their strongest modality-asess same content standard but in a less complex, more concrete method
 -embed generalization-change context often
 
 eg-touch math
 |  | 
        |  | 
        
        | Term 
 
        | Instructional adaptations |  | Definition 
 
        | -utilize different instructional formats-large group, small group, 1 on 1 (peer, 2X more achievement than computer guided and 3X more achievement than reducing class size, and 4X as much achievement than lenghtening the school day by 1 hour) -provide choices
 -utilize strenghts to build on weaknesses
 -ulitize cooperative learning
 -shape task completion
 -have a variety of materials available
 -model the expectation of a manipulative/example
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | 1) Identify behaviors in need of attention 2) define behavior according to its topography and function
 3) fhoose and implement a reinforcement system
 4) plan to teach replacement skills-know the inappropriateness of the behavior
 |  | 
        |  | 
        
        | Term 
 
        | Behavior management strategies |  | Definition 
 
        | -state expectations clearly -catch the child being good
 -use specific praise
 -at a neutral time, describe alternatives to the challenging behavior
 -present limited choices
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | A sytematic approach of early and continual treatment from a team of professionals focused on meeting the needs of individual children and their families -mandated by federal legislation
 
 Birth-3-covered by IDEA part C
 Age 3-5-covered by IDEA part B and individual states
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | 1972 in North Carolina -111 families with at risk infants
 -randomized control
 -1/2 recieved treatment in developmental approach stimulating positive and responsive environment, 5 days/week 50 weeks/year
 -10-15 IQ points higher through adulthood
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | 1977 -63 poveraged students
 -divided into three groups, one got program and home visits, next got home visits only, the other got no treatment, group 1 was the only one to benefit (10-15 IQ points)
 |  | 
        |  | 
        
        | Term 
 
        | The Infant Health and Development Program |  | Definition 
 
        | 1992 -985 premature/low birth weight infants
 -heavier birthweight, the higher the IQ
 -6.5 IQ points higher in lowest birth weight compared to highest birth weight control
 -By age 5-8, the gains were not sustained
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | Mothers with IQ less than 75 -home visits for 4 months, program through age 6
 -30 points higher in IQ
 -18 points higher at age 10
 -did not translate to higher achievement in the classroom
 |  | 
        |  | 
        
        | Term 
 | Definition 
 
        | Inner City Michigan -children already diagnosed with developmental delay
 -late start treatment (4-5 years)
 -Greater IQ at age 6
 -At age 15, both groups had same IQ
 -Intevention group stayed in school longer, had less teenage pregnancies, less criminal activity, more college attendance
 |  | 
        |  | 
        
        | Term 
 
        | Conclusion from 5 studies |  | Definition 
 
        | -Children at high risk of developmental disabilities benefit from an EI program -Intensity, parent participation, and continuity impact improvement
 -different individual outcomes
 |  | 
        |  | 
        
        | Term 
 
        | 5 essential operating principles for effective EI programs |  | Definition 
 
        | 1) multidisciplinary 2) intergenerational
 3) individualized for children and families
 4) contextually embedded in local service delivery program
 5) research oriented using randomized controlled trials
 |  | 
        |  | 
        
        | Term 
 
        | 7 essential elements for effective EI programs |  | Definition 
 
        | 1) timing and duration-birth->age 5 or 6 2) sufficient intensity- 5 days/week, 50 weeks/year
 3) direct engagement of child-individualized
 4) multiple types of support services-OT, PT, physician, teacher
 5) careful monitoring and responsiveness to individual needs
 6) follow through to maintain early benefits
 7) cultural appropriateness-diverse populations, understand culture before entering home
 |  | 
        |  |